new year, new hurdles
After much reluctance i figured i should FINALLY catch everyone up. Christmas was great, i was well and able to go skating and hiking with my family in jasper ! its always great to be able to do things with my family, and it makes there day that i join them.
My new year started with a bang, just not in a good way. I felt my body struggling to get thru the day and didnt think much of it because its not like its anything new lol. Unfortunately bad became worse and we were left trying to get ahold of my specialist in Toledo. Normally i will have a bad or two, pass out a few times then i would recover, this time recovery was no where in sight. I eventually got a hold of Dr. Grubb's nurse and she later got back to me with a new medication to try in hopes that itwould help. After two iv infusions of fluids within one week, i finally got a hold of things and knew it would take awhile but i was going to get better. I can honestly say i dont remember being that bad in a very long time and thats a scary thing to me. Its scary because i have come so far and figured out so much about how things effect my body that i was doing really well. I guess it caught me off guard enough that its taken a bit to actually talk about it. I know its normal with p.o.t.s that you can be really good and have bouts of bad but its disheartening when you feel you have no control at all over your body, and have no idea how to fix it. To me this is the lowest part of a chronic illness, its things like this that put me at a all time low. Its scary, it makes you lose hope because you have tried everything that usually helps and you know help is hard to find seeing its all the way in Toledo. I guess you can say p.o.t.s can eat you up and spit you out but you have stay strong because you have to get back up, dust yourself off and fight even harder than last time. The tough part is not only do i have to get back up, fight hard and put on a brave face on, my family has to as well, it effects them just as much as it does me. We have learned to come together in tough times because you cant do it on your own.
On a positive note, after so long i finally have monthly iv infusions set up at the hospital, this is huge to me ! As weird and unusual, fluid treatments help me so much and my hope now is that it will prevent or at least ease the bad bouts. Im really looking forward to whats to come the next while, no matter what i will continue to push. Shout out to all those fighting p.o.t.s, it takes courage and strength.
Here is a link to a p.o.t.s awareness video. these two are biking across america to raise money for p.o.t.s research and the fight for a cure.
https://www.crowdrise.com/pedalforpots
Thanks for continuing to read my blogs, i know lately they are far and few between but i will try harder because i know once i start writing it helps me tons. Hope everyone is well and enjoying the new year, God Bless
-Hannah
My new year started with a bang, just not in a good way. I felt my body struggling to get thru the day and didnt think much of it because its not like its anything new lol. Unfortunately bad became worse and we were left trying to get ahold of my specialist in Toledo. Normally i will have a bad or two, pass out a few times then i would recover, this time recovery was no where in sight. I eventually got a hold of Dr. Grubb's nurse and she later got back to me with a new medication to try in hopes that itwould help. After two iv infusions of fluids within one week, i finally got a hold of things and knew it would take awhile but i was going to get better. I can honestly say i dont remember being that bad in a very long time and thats a scary thing to me. Its scary because i have come so far and figured out so much about how things effect my body that i was doing really well. I guess it caught me off guard enough that its taken a bit to actually talk about it. I know its normal with p.o.t.s that you can be really good and have bouts of bad but its disheartening when you feel you have no control at all over your body, and have no idea how to fix it. To me this is the lowest part of a chronic illness, its things like this that put me at a all time low. Its scary, it makes you lose hope because you have tried everything that usually helps and you know help is hard to find seeing its all the way in Toledo. I guess you can say p.o.t.s can eat you up and spit you out but you have stay strong because you have to get back up, dust yourself off and fight even harder than last time. The tough part is not only do i have to get back up, fight hard and put on a brave face on, my family has to as well, it effects them just as much as it does me. We have learned to come together in tough times because you cant do it on your own.
On a positive note, after so long i finally have monthly iv infusions set up at the hospital, this is huge to me ! As weird and unusual, fluid treatments help me so much and my hope now is that it will prevent or at least ease the bad bouts. Im really looking forward to whats to come the next while, no matter what i will continue to push. Shout out to all those fighting p.o.t.s, it takes courage and strength.
Here is a link to a p.o.t.s awareness video. these two are biking across america to raise money for p.o.t.s research and the fight for a cure.
https://www.crowdrise.com/pedalforpots
Thanks for continuing to read my blogs, i know lately they are far and few between but i will try harder because i know once i start writing it helps me tons. Hope everyone is well and enjoying the new year, God Bless
-Hannah
Comments
Post a Comment